Lainie Jones Comprehensive Cancer Survivorship Act of 2026
A BILL
To address the health of cancer survivors and unmet needs that survivors face through the entire continuum of care from diagnosis through active treatment and posttreatment, in order to improve survivorship, treatment, transition to recovery and beyond, quality of life and palliative care, and long-term health outcomes, including by developing a minimum standard of care for cancer survivorship, irrespective of the type of cancer, a survivor’s background, or forthcoming survivorship needs, and for other purposes.
Sec. 2 Findings
Sec. 3 Definitions
Sec. 4 Coverage of cancer care planning and coordination services
“(KK) cancer care planning and coordination services (as defined in subsection (nnn));”
“(nnn) Cancer care planning and coordination services
“(1) The term cancer care planning and coordination services means, with respect to an individual who is diagnosed with cancer, the development of a treatment plan by a physician, physician assistant, or nurse practitioner that—
“(A) includes each component of the Institute of Medicine Care Management Plan (as described in the article entitled “Delivering High-Quality Cancer Care: Charting a New Course for a System in Crisis” published by the Institute of Medicine);
“(B) is furnished in written form or electronically, at the visit of such individual with such physician, physician assistant, or nurse practitioner, or as soon after the date of the visit as practicable; and
“(C) is furnished, to the greatest extent practicable, in a form that appropriately takes into account cultural and linguistic needs of the individual in order to make the plan accessible to such individual.
“(2) The Secretary shall establish frequencies at which services described in paragraph (1) may be furnished, provided that such services may be furnished with respect to an individual—
“(A) at the time such individual is diagnosed with cancer for purposes of planning treatment;
“(B) if there is a change in the condition of such individual or such individual’s treatment preferences;
“(C) at the end of active treatment and beginning of survivorship care; and
“(D) if there is a recurrence of such cancer.”
Sec. 5 Stakeholder meeting on survivorship transition tools; publication of information resources
Sec. 6 Alternative payment model for quality cancer survivorship care
Sec. 7 Cancer survivor employment assistance program
Sec. 8 Comprehensive cancer survivorship program
Sec. 9 Survivorship progress report
Sec. 10 Medicaid coverage of healthcare transitions for survivors of childhood and adolescent cancer
“(H) notwithstanding section 1902(a)(10)(B) (relating to comparability), for making medical assistance available for healthcare transitions for survivors of childhood and adolescent cancer (as defined in section 1905(jj));”
“(jj) Healthcare transitions for survivors of childhood and adolescent cancer
“(1) Definition—For purposes of section 1902(a)(10)(H) and this subsection, the term healthcare transitions for survivors of childhood and adolescent cancer—
“(A) means transition services from active oncological care to primary care of a child or adolescent with cancer ensuring development and delivery of survivorship care plans to patients, families and primary care providers and transition coverage; and
“(B) includes—
“(i) transition care based on the Children’s Oncology Group (in this section referred to as the “COG”) Long-term Follow-Up Guidelines for Survivors of Childhood, Adolescent, and Young Adult Cancers; and
“(ii) coverage based on the COG exposure-based standard of care for risk assessment and surveillance recommendations;
“(iii) transition services that include evidence-based recommendations for screening and management of late effects that may arise as a result of treatment for childhood cancer, increase awareness of potential late effects, and follow-up care for childhood cancer and adolescent survivors; and
“(iv) at least 2 survivorship transition care visits per year.”
Sec. 11 Medicaid coverage of cancer fertility services for cancer survivors
“(H) notwithstanding section 1902(a)(10)(B) (relating to comparability), for making medical assistance available for cancer fertility services (as defined in subsection (kk));”
“(kk) Cancer fertility services
“(1) Definition—For purposes of section 1902(a)(10)(H) and this subsection, the term cancer fertility services—
“(A) means fertility treatment and fertility preservation services for individuals diagnosed with cancer who—
“(i) are undergoing treatment for such cancer where such treatment may lead to iatrogenic infertility;
“(ii) previously underwent such treatment and may be at risk of such infertility due to such treatment; or
“(iii) are preparing to undergo such treatment where such treatment may lead to such infertility; and
“(B) includes—
“(i) other services, including experimental and non-experimental services to preserve fertility or treat infertility (as determined by the Secretary, consistent with established medical practices and professional guidelines published by the American Society for Reproductive Medicine, the American Society of Clinical Oncology, or other professional medical organizations specified by the Secretary); and
“(ii) long-term storage costs—
“(I) with respect to individuals under the age of 18, for a period of not less than 15 years; and
“(II) with respect to individuals age 18 or older, for a period of not less than 10 years.
“(2) Exception for territories—Notwithstanding any other provision of this title, in the case of a State (other than the 50 States and the District of Columbia), the requirement stated in section 1902(a)(10)(H) shall be optional.”
“(K) cancer fertility services (as defined in section 1905(kk)); and”
“(K) cancer fertility services (as defined in section 1905(jj)); and”
“(xv) Cancer fertility services (as defined in section 1905(jj)).”
“(12) Required coverage of cancer fertility services for cancer survivors—Regardless of the type of coverage elected by a State under subsection (a), the child health assistance provided for a targeted low-income child, and, in the case of a State that elects to provide pregnancy-related assistance pursuant to section 2112, the pregnancy-related assistance provided for a targeted low-income pregnant woman (as such terms are defined for purposes of such section), shall include coverage of cancer fertility services (as described in section 1905(jj)).”