Congenital Heart Futures Reauthorization Act of 2024

“(f) Stakeholder workshop

“(1) In general—Not later than 1 year after the date of enactment of the Congenital Heart Futures Reauthorization Act of 2024, the Secretary shall convene a workshop composed of subject matter experts, on adult patients living with congenital heart disease, to—

“(A) identify research gaps and opportunities related to the lifelong needs of congenital heart disease patients, including long-term health outcomes, quality of life, mental health, and health care utilization;

“(B) assess the workforce capacity in the United States of health care providers who treat adult patients living with congenital heart disease, and options to address any such shortages in such workforce, which may include strategies to expand fellowship training programs and support regional care centers; and

“(C) foster collaboration and dissemination of information across Federal agencies, health care providers, researchers, and patient organizations.

“(2) Composition—The workshop described in paragraph (1) shall be led by the Secretary, and shall involve participants that include, as appropriate, stakeholders representing patient organizations, health care professionals, research entities, health insurance providers, accrediting organizations, and relevant Federal agencies, including the Centers for Disease Control and Prevention, the National Institutes of Health, and the Health Resources and Services Administration.

“(g) Report—Not later than 3 years after the date of enactment of the Congenital Heart Futures Reauthorization Act of 2024, the Secretary shall issue a report to the Committee on Health, Education, Labor, and Pensions of the Senate and the Committee on Energy and Commerce of the House of Representatives on findings and recommendations of the Secretary with respect to strategies to advance research related to the lifelong needs of congenital heart disease patients and address workforce shortages of providers for adult patients living with congenital heart disease, and, as appropriate, progress made by the Secretary to implement such strategies and a plan for implementing such recommendations.”