Recognizing the seriousness of myotonic dystrophy and expressing support for the designation of September 15, 2022, as “International Myotonic Dystrophy Awareness Day”.

S. Res. 772 · 117th Congress · Sep 19, 2022 · Lineage

RESOLUTION

Recognizing the seriousness of myotonic dystrophy and expressing support for the designation of September 15, 2022, as International Myotonic Dystrophy Awareness Day.

That the Senate—

(1)

expresses support for the designation of September 15, 2022, as “International Myotonic Dystrophy Awareness Day”;

(2)

recognizes the seriousness of myotonic dystrophy; and

(3)

supports the goals and ideals of International Myotonic Dystrophy Awareness Day, which include—

(A)

committing to promoting and advancing the health, well-being, and inherent dignity of all children and adults with myotonic dystrophy;

(B)

supporting the advancement of scientific and medical myotonic dystrophy research;

(C)

fostering biopharmaceutical innovation that will lead to Food and Drug Administration-approved treatments and eventually a cure for myotonic dystrophy;

(D)

advancing programs and policies that assist individuals living with myotonic dystrophy and the caregivers of such individuals; and

(E)

encouraging awareness and education of myotonic dystrophy for patients, caregivers, clinicians, and researchers.

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Sep 19, 2022viewing Agreed to Senate Mr. Kaine (for himself, Ms. Lummis, Ms. Klobuchar, and Ms. Smith) submitted the following resolution; which was referred to the Committee on Health, Education, Labor, and Pensions See what changed
Sep 19, 2022 Introduced in Senate Mr. Kaine (for himself, Ms. Lummis, Ms. Klobuchar, and Ms. Smith) submitted the following resolution; which was referred to the Committee on Health, Education, Labor, and Pensions

Recognizing the seriousness of myotonic dystrophy and expressing support for the designation of September 15, 2022, as “International Myotonic Dystrophy Awareness Day”.

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