Supporting the goals and ideals of World Sickle Cell Awareness Day.

supports the goals and ideals of World Sickle Cell Awareness Day;

commits to ensuring equitable access to new sickle cell disease (referred to in this resolution as “SCD”) treatments by shining the light among all economic, racial, and ethnic groups to improve health outcomes for those living with SCD;

calls on the Department of Health and Human Services to create global policy solutions aimed at providing support for the global community and the domestic resources needed to provide access to newborn screening programs, therapeutic interventions, and support services in partnership with local governments;

supports eliminating barriers to equitable access for innovative SCD therapies, including cell, gene, and gene-editing therapies in the Medicare and Medicaid systems for the most vulnerable patients;

encourages the people of the United States and the world to hold appropriate programs, events, and activities on Sickle Cell Awareness Day to raise public awareness of SCD traits, preventative care programs, treatments, and other patient services for those suffering from SCD, complications from SCD, and conditions related to SCD; and

urges that the options to be considered to combat SCD not only address access to potential future curative treatments, but also address the bias that the population most affected by SCD continues to face within the United States and global healthcare systems.