S. Res. 152 (Introduced in Senate) — Designating November 28, 2013, as “National Holoprosencephaly Awareness Day” to increase awareness and education of the disorder.

(1)

supports the designation of November 28, 2013, as “National Holoprosencephaly Awareness Day”;

(2)

urges Federal agencies—

(A)

to continue supporting research to better understand the causes of HPE;

(B)

to provide better counseling to families with the genetic forms of HPE; and

(C)

to develop new ways to treat, and potentially prevent, HPE; and

(3)

calls on the people of the United States, interested groups, and affected persons—

(A)

to promote awareness of HPE;

(B)

to take an active role in the fight to end the devastating effects of HPE; and

(C)

to observe “National Holoprosencephaly Awareness Day” with appropriate ceremonies and activities.

Designating November 28, 2013, as “National Holoprosencephaly Awareness Day” to increase awareness and education of the disorder.