§300b–16. Authorization of appropriations for newborn screening programs and activities — Inbound Citations

Citations to 42 U.S.C. § 300b–16 as a whole

• 42 U.S.C. § 300b–8(a)

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  (a) From amounts appropriated under section 300b–16 of this title, the Secretary, acting through the Administrator of the Health Resources and Services Administration (referred to in this section as the “Administrator”) and taking into consideration the expertise of the Advisory Committee on Heritable Disorders in Newborns and Children (referred to in this section as the “Advisory Committee”), shall award grants to eligible entities to enable such entities—

  (1) to enhance, improve or expand the ability of State and local public health agencies to provide screening, counseling, or health care services to newborns and children having or at risk for heritable disorders;

  (2) to assist in providing health care professionals and newborn screening laboratory personnel with education in newborn screening, counseling, and training in—

  (A) relevant and new technologies in newborn screening and congenital, genetic, and metabolic disorders;

  (B) the importance of the timeliness of collection, delivery, receipt, and screening of specimens; and

  (C) sharing of medical and diagnostic information with providers and families;

  (3) to develop and deliver educational programs (at appropriate literacy levels) about newborn screening counseling, testing, follow-up, treatment, and specialty services to parents, families, and patient advocacy and support groups;

  (4) to establish, maintain, and operate a system to assess and coordinate followup and treatment relating to congenital, genetic, and metabolic disorders; and

  (5) to improve the timeliness of—

  (A) the collection, delivery, receipt, and screening of specimens; and

  (B) the diagnosis of heritable disorders in newborns.