---
kind: "section"
citation: "42 U.S.C. § 285g–9"
title: "42"
title_heading: "The Public Health and Welfare"
number: "285g–9"
heading: "Fragile X"
release: "119-102"
date: "2026-07-12"
url: "https://uscodex.org/usc/42/285g-9"
units:
  - "Chapter 6A — Public Health Service"
  - "Subchapter III — National Research Institutes"
  - "Part C — Specific Provisions Respecting National Research Institutes"
  - "Subpart 7 — eunice kennedy shriver national institute of child health and human development"
---

# §285g–9. Fragile X

- (a) **Expansion and coordination of research activities—** The [Director](/usc/42/11851.md?p=5) of the Institute, after consultation with the [advisory council](/usc/42/274l–1.md?p=1) for the Institute, shall expand, intensify, and coordinate the activities of the Institute with respect to research on the disease known as fragile X.
- (b) **Research centers—**
  - (1) **In general—** The [Director](/usc/42/11851.md?p=5) of the Institute shall make grants or enter into contracts for the development and operation of centers to conduct research for the purposes of improving the diagnosis and [treatment](/usc/42/11851.md?p=11) of, and finding the cure for, fragile X.
  - (2) **Number of centers—**
    - (A) **In general—** In carrying out [paragraph (1)](#b-1), the [Director](/usc/42/11851.md?p=5) of the Institute shall, to the extent that amounts are appropriated, and subject to [subparagraph (B)](#b-2-B), provide for the establishment of at least three fragile X research centers.
    - (B) **Peer review requirement—** The [Director](/usc/42/11851.md?p=5) of the Institute shall make a grant to, or enter into a contract with, an entity for purposes of establishing a center under [paragraph (1)](#b-1) only if the grant or contract has been recommended after technical and scientific peer review required by [regulations](/usc/42/201.md?p=d) under [section 289a of this title](/usc/42/289a.md).
  - (3) **Activities—** The [Director](/usc/42/11851.md?p=5) of the Institute, with the assistance of centers established under [paragraph (1)](#b-1), shall conduct and support basic and biomedical research into the detection and [treatment](/usc/42/11851.md?p=11) of fragile X.
  - (4) **Coordination among centers—** The [Director](/usc/42/11851.md?p=5) of the Institute shall, as appropriate, provide for the coordination of the activities of the centers assisted under this section, including providing for the [exchange](/usc/42/300gg–91.md?p=d-21) of information among the centers.
  - (5) **Certain administrative requirements—** Each center assisted under [paragraph (1)](#b-1) shall use the facilities of a single institution, or be formed from a [consortium](/usc/42/17061.md?p=4) of cooperating institutions, meeting such requirements as may be prescribed by the [Director](/usc/42/11851.md?p=5) of the Institute.
  - (6) **Duration of support—** Support may be provided to a center under [paragraph (1)](#b-1) for a period not exceeding 5 years. Such period may be extended for one or more additional periods, each of which may not exceed 5 years, if the operations of such center have been reviewed by an appropriate technical and scientific peer review group established by the [Director](/usc/42/11851.md?p=5) and if such group has recommended to the [Director](/usc/42/11851.md?p=5) that such period be extended.

## Source credit

(July 1, 1944, ch. 373, title IV, § 452E, as added Pub. L. 106–310, div. A, title II, § 201, Oct. 17, 2000, 114 Stat. 1109; amended Pub. L. 109–482, title I, § 103(b)(30), Jan. 15, 2007, 120 Stat. 3688.)

## Notes

### Editorial Notes

### Amendments

2007—Subsec. (b)(7). Pub. L. 109–482 struck out heading and text of par. (7). Text read as follows: “For the purpose of carrying out this subsection, there are authorized to be appropriated such sums as may be necessary for each of the fiscal years 2001 through 2005.”

### Statutory Notes and Related Subsidiaries

### Effective Date of 2007 Amendment

Amendment by Pub. L. 109–482 applicable only with respect to amounts appropriated for fiscal year 2007 or subsequent fiscal years, see section 109 of Pub. L. 109–482, set out as a note under section 281 of this title.